In 2017, the Gilberts established NF Forward, a nonprofit 501c3 organization. It shares a vision with the Gilbert Family Foundation to eradicate NF by funding groundbreaking, cutting-edge NF research. NF Forward strives to raise awareness about NF among a wide range of individuals and invite their support of this innovative vision.
NF Forward’s signature event is beNeFit, a major gala held at Cobo Center in downtown Detroit every November. Since 2013, beNeFits I-VII raised over $30 million for NF research and attracted more than 1,800 supporters annually to join the fight to end NF.