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Traceann Rose
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Work Experience
Director, Community Building And Patient Engagement
Present
Company Details
The Children’s Tumor Foundation is a 501(c)(3) not-for-profit organization dedicated to funding and driving innovative research that will result in effective treatments for the millions of people worldwide living with NF, a group of genetic conditions that causes tumors to grow on nerves throughout the body and may lead to blindness, deafness, bone abnormalities, disfigurement, learning disabilities, disabling pain, and cancer. NF is comprised of neurofibromatosis and all types of schwannomatosis. It affects 1 in every 2,000 births across all populations equally. There is no cure yet – but the Children’s Tumor Foundation mission of driving research, expanding knowledge, and advancing care for the NF community fosters our vision of one day ending NF. For more information, please visit www.ctf.org.
Year Founded
1978
Social Media
LinkedinFacebookTwitter
Industry
Non-profit Organizations
HQ Location
697 Third Avenue Suite 418 New York, NY 10017, US
Keywords
neurofibromatosisNFNF1NF2schwannomatosiscancerdeafnessblindnesspainand learning disabilities
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