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Suzie-Ann Bakker
Communication Coordinator at World Duchenne Organization
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Work Experience
Communication Coordinator
Feb 2018 - Present · 6 years and 11 months
Jan 2020 - Present · 5 years
Project Manager
Mar 2020 - Present · 4 years and 10 months
Communications & Event Manager
Jan 2020 - Mar 2021 · 1 years and 2 months
Company Details
The World Duchenne Organization (WDO) is a worldwide organization connecting 52 member patient organizations from 39 countries dedicated to finding a cure and viable treatments for Duchenne Muscular Dystrophy, a degenerative and fatal neuromuscular condition that affects mainly boys and men. Approximately one in 5,000 live male births worldwide results in Duchenne. The WDO has made it its mission to promote good standards of care, inform patients and create a hub to support and evolve our activities through dynamic advocacy and an active, vocal and informed patient body around the globe.  Our notable advocacy partners include the European Patient's Forum, EURORDIS, ENMC and Rare Diseases International. WDO is an eligible member of European Medicines Agency.
Year Founded
2003
Social Media
Linkedin
Industry
Hospitals and Health Care
HQ Location
Landjuweel 34 Veenendaal, 3905 PG, NL
Keywords
Defeating Duchenne Muscular DystrophyRaising awareness through campaigns and actionsAdvocacyInforming and sharing knowledge with parents and familiesDeveloping Standards of CareGathering data and insight into DuchenneFighting for social inclusionProper genetic testingand New born screening
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