RP
Richard Pezzillo
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Work Experience
Feb 2012 - Apr 2016 · 4 years and 2 months
Communications Director
Apr 2014 - Apr 2016 · 2 years
Communications Manager
Feb 2012 - Apr 2014 · 2 years and 2 months
Deputy Press Secretary -- Us Senator Sheldon Whitehouse
Jun 2011 - Feb 2012 · 8 months
Company Details
Hemophilia Federation of America (HFA) is a non-profit 501(c)3 organization incorporated in 1994 to address the evolving needs of the bleeding disorders community. We serve as a consumer advocate for safe, affordable, & obtainable blood products and health coverage, as well as a better quality of life for all persons with bleeding disorders. HFA’s ongoing consumer advocacy agenda includes product safety, as well as accessibility, affordability, & availability of the products the individuals of this community require. Based in Washington, DC, HFA consists of a national office, organization, and 30+ community-based organizations made up of numerous parents, children, siblings, grandparents and friends impacted by a bleeding disorder. Many non-affected individuals and organizations such as healthcare providers, sponsors, donors, & specialty pharmacies play a significant role in the community. HFA utilizes its collaborative federation to strengthen community support and awareness, develop effective local organizations, and implement valuable community-based programs. These programs include a wide range of adult outreach initiatives, as well as broad-based support for families with bleeding disorders/hemophilia. HFA represents the bleeding disorders community on Capitol Hill, with the FDA, Centers for Disease Control and Prevention, and other key agencies. HFA strives to educate the community and provide tools that give the community a voice at state & federal legislatures.
Year Founded
1994
Social Media
LinkedinFacebookTwitter
Industry
Public Policy Offices
HQ Location
999 N. Capitol Street NE Suite 301 Washington, DC 20002, US
Keywords
public policybleeding disordershemophilibloogenetic disordersmedicineHematologyvon Willebrand diseaseCoagulatiovocacy
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