The mission of the Brave Will Foundation is to provide services and support for children with life-threatening illnesses and their families until a cure can be found. The foundation strives to take a family-centered approach to all aspects of palliative care and ensure that the needs of the child and his/her family are being met throughout all stages of care.
The goals of the foundation include:
Financial support for the Journeys Program at Albany Medical Center: This program provides pediatric palliative care support for children with disease that greatly risks their chance of survival. This support also extends to family members.
SOAR Program: The program provides funding for families on the first anniversary of a child’s passing. SOAR allows families to spend that anniversary day doing something memorable with the entire family in honor of their child.
Inpatient Pediatric Hospice Facility at Albany Medical Center: The foundation has been working with Albany Medical Center administration to secure space in the children’s hospital for an inpatient pediatric hospice facility. The facility would allow families to spend time with a child during the final days at the hospital, but do so in an experience that is unlike any other that the hospital currently can provide.