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Lorraine Biaggi
Executive Director, Florida & Puerto Rico Chapter at National Scleroderma Foundation
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Work Experience
Executive Director, Florida & Puerto Rico Chapter
Mar 2024 - Present · 9 months
Director
Feb 2017 - Present · 7 years and 10 months
Membership And Donor Relations Manager
Aug 2021 - Mar 2024 · 2 years and 7 months
Company Details
The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust.
Year Founded
1998
Social Media
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Industry
Non-profit Organizations
HQ Location
300 Rosewood Drive Suite 105 Danvers, MA 01923, US
Keywords
SclerodermSystemic sclerosisLocalized sclerodermMedical researchDisease awarenessRare diseaseAutoimmune diseaseRaynaud's phenomenoPatient supportPatient advocacy
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