JL
Johnathan L.
Rare Disease Advocacy Officer at Know Rare
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Work Experience
Rare Disease Advocacy Officer
May 2023 - Present · 1 years and 8 months
Aug 2020 - Present · 4 years and 5 months
Project Specialist
Aug 2022 - Present · 2 years and 5 months
Technical Consultant Ii
Aug 2020 - Aug 2022 · 2 years
Company Details
11-50 Employees
At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and more. Fueled by a proprietary technology platform created by a team of people who have been living with the realities of a rare disease, our goal is empowerment through understanding, tools and resources to manage everyday life. Know Rare improves access to the latest rare disease research through information from experts, providers, and sponsors to help to demystify the process for people considering participating in a clinical trial.
Year Founded
2020
Social Media
LinkedinFacebook
Industry
Health and Human Services
HQ Location
1460 Broadway New York, NY 10036, US
Keywords
clinical trialsrare diseaserare cancerclinical studies
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