JC
Janet Collins
Chairperson Of The Board at Syndromes Without A Name (Swan) Australia
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Work Experience
Chairperson Of The Board
Nov 2022 - Present · 2 years and 2 months
Anglican Parish of Port Fairy
Board Treasurer
Aug 2022 - Present · 2 years and 5 months
Director, Board Of Directors
Jul 2021 - Present · 3 years and 6 months
Company Details
SWAN is a not for profit charity and incorporated association. We provide information and support to families caring for a child with an undiagnosed or rare genetic condition. We want to ensure that nobody has to walk this journey alone and that information and professional services are accessible to everyone affected by a genetic condition. We want to raise awareness of genetic conditions to the broader community. Services and support in our community are often allocated on the basis of a diagnosis. People without a diagnosis can miss out. We advocate for better services, resources and information for our families. Together we can unite to improve the lives of all those affected.
Year Founded
2012
Social Media
Linkedin
Industry
Non-profit Organization Management
HQ Location
PO Box 390 Fairfield, VIC 3078, AU
Keywords
Providing information and support to families caring for a child with an undiagnosed or rare genetic condition.Systemic advocay on health and disability issuesPeer supportNDIS informationCommunity education on undiagnosed and rare genetic disordersand Public speaking
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