GI
Ginger Irvine
Co-Founder And Trustee Board Member at Advocacy For Neuroacanthocytosis Patients
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Work Experience
Co-Founder And Trustee Board Member
Sep 2009 - Present · 15 years and 4 months
Founding Director
Jan 1982 - Jun 1986 · 4 years and 5 months
Company Details
Neuroacanthocytosis (NA syndromes) refers to 2 genetic disorders (chorea-acanthocytosis and McLeod syndrome) characterised by misshapen, spiny red blood cells (acanthocytosis) and neurological abnormalities, particularly movement disorders. The onset, severity and specific physical findings vary depending upon the specific type of NA present. Symptoms include chorea (involuntary, dance-like movements), involuntary movements of the face and tongue, progressive cognitive impairment, muscle weakness, seizures and behavioural or personality changes.
Year Founded
2002
Social Media
Linkedin
Industry
Non-profit Organization Management
HQ Location
39 Coleherne Ct London, London SW5 0DN, GB
Keywords
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