Cystic fibrosis (CF) is the most common, life-threatening genetic condition in New Zealand. It causes a significantly shorter life expectancy and there is currently no cure. One in 25 people carry the faulty gene that causes it, often without even knowing.
In the lungs CF causes chronic infections, meaning that people with CF struggle with reduced lung function and have to spend hours doing physiotherapy and taking nebulised treatments each day. In the digestive system it reduces the amount of insulin produced and stops the digestive enzymes that aid digestion. This can cause malnutrition, leading to poor growth and physical weakness.
One of the most striking features of CF is cross infection. Two people with the condition should never be in close contact as their lungs harbour specific bacteria that are a risk to someone else with the condition. This means no group support and the added stress of having to physically avoid others with CF.
Cystic Fibrosis New Zealand works towards a vision where all people living with CF will be able to manage their condition and experience optimised quality of life. We provide information and support through our network of social workers and 12 branches, advocacy and awareness services, medical equipment, welfare assistance and research towards a cure.