I Am Dying Out Loud’s mission is centered on respecting and protecting people's personal spiritual healthcare choices, especially during life-threatening or terminal illnesses.
I Am Dying Out Loud also seeks to enhance the quality of life for those battling ALS by providing "bucket list" experiences for both ALS patients and their loved ones, so they can create treasured “moments” of celebrating life together.
To achieve our mission we focus on the following three elements: EMPOWER, EDUCATE, and EXPERIENCE.
We EMPOWER by:
Equipping individuals with effective language to request patient-centered and patient-driven care without legal, institutional, and religious barriers.
Encouraging sick and terminally ill individuals to voice THEIR wants and needs regarding religious influence by their caretakers and healthcare providers.
Initiating advocacy by giving individuals resources to unite with allies in the healthcare system, legislature, and community to define the treatment that aligns with their values and choices.
We EDUCATE by:
Engaging with people in the healthcare, hospice, and deathcare professions about utilizing secular language and endorsing a non-religious environment to support inclusivity.
Providing insight into how religious assumptions in medical forms, iconography in healthcare facilities, and religious language by staff are unethical and disrespectful.
Offering information about current patient rights, state laws, policies, and practices that prevent equitable treatment and availability of end-of-life options.
We enhance life EXPERIENCE by:
Providing secular support staff who offer compassion, guidance, and comfort in medical facilities for individuals who are dying or experiencing a serious health crisis.
Providing “bucket list” opportunities for individuals diagnosed with ALS, a terminal neuromuscular disease, so they can fulfill their life-long dreams and create treasured “moments” of celebrating life together with their loved ones.