The Yaya Foundation For 4H Leukodystrophy

The Yaya Foundation for 4H Leukodystrophy is the only organization in the world fighting for children with 4H Leukodystrophy. We aim to do that by building an ecosystem of patients, families, researchers, clinicians, scientific experts, and supporters in order to: -Accelerate and support research that will help better understand 4H Leukodystrophy, develop therapies that will help patients with 4H Leukodystrophy, and find a cure; -Provide educational and emotional support to patients and families affected by 4H Leukodystrophy; and -Raise awareness of 4H Leukodystrophy.