Canadian Organization For Rare Disorders

CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. CORD works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare disorders in Canada. How does CORD serve Canadians with Rare Disorders? 1 in 12 Canadians has a rare disorder. Many others are affected or at risk but remain undiagnosed and unaware. CORD provides information to individuals, and links to other rare disorder support groups and organizations from Prince Rupert, British Columbia to St. John’s, Newfoundland. Mission: Provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. Objectives: •Educate and raise awareness among health professionals, media, general public and policy makers about rare disorders in Canada •Facilitate and participate in implementation of Canadian Rare Disease Drug Strategy •Develop, support, and participate in implementation of Canadian Rare Disease Strategy/Framework •Increase capacity of patient community to advocate and participate on behalf of rare disease •Promote research on rare disorders in Canada